Autism Cafe
Wednesday, 15 May 2013
Wednesday's Website - The Autism Advocacy Network
www.integratedautismconsulting.com
The Autism Advocacy Network was featured in the last edition of Autism Matters, a publication of Autism Ontario. It is a new service in Ontario, and one I thought many of you might find interesting. The following is from their website:
"The Autism Advocacy Network is a group of professional individuals who are committed to providing best practice special educational advocacy across the province of Ontario. The main goal is to assist individuals and families to navigate the education system.
The Autism Advocacy Network will focus on positive proactive strategies and each participant will strive to:
- Facilitate improved communication between home and school.
- Provide information about the special education process.
- Assist parents in understanding the acronyms used within the education system: (IPRC, IEP, SNC).
- Inform parents of their rights and responsibilities and those of the education system.
- Share resources that will assist in understanding the special education process.
- Provide direct support and/or suggestions for individual situations.
- Provide education and coaching to empower families to advocate on their children's behalf.
- Provide in-school support, when requested."
Navigating the education system with a special needs child can be challenging following a new diagnosis and as your child progresses. Now there is a service that can be of assistance through the process and hopefully make things a little less difficult!
- Naomi
Thursday, 9 May 2013
Thursday's Inspiration - The Invisible Mother
It all began to make sense, the blank stares, the lack of response, the way one of the kids will walk into the room while I'm on the phone and ask to be taken to the store. Inside I'm thinking, 'Can't you see I'm on the phone?'
Obviously not. No one can see if I'm on the phone, or cooking, or sweeping the floor, or even standing on my head in the corner, because no one can see me at all. I'm invisible. The invisible Mom. Some days I am only a pair of hands, nothing more: Can you fix this? Can you tie this? Can you open this?
Some days I'm not a pair of hands; I'm not even a human being. I'm a clock to ask, 'What time is it?' I'm a satellite guide to answer, 'What number is the Disney Channel?' I'm a car to order, 'Right around 5:30, please.'
I was certain that these were the hands that once held books and the eyes that studied history and the mind that graduated sum a cum laude - but now they had disappeared into the peanut butter, never to be seen again. She's going, she's going, she's gone!
One night, a group of us were having dinner, celebrating the return of a friend from England. Janice had just gotten back from a fabulous trip, and she was going on and on about the hotel she stayed in. I was sitting there, looking around at the others all put together so well. It was hard not to compare and feel sorry for myself. I was feeling pretty pathetic, when Janice turned to me with a beautifully wrapped package, and said, 'I brought you this.' It was a book on the great cathedrals of Europe. I wasn't exactly sure why she'd given it to me until I read her inscription: 'To Charlotte, with admiration for the greatness of what you are building when no one sees.'
In the days ahead I would read - no, devour - the book. And I would discover what would become for me, four life-changing truths, after which I could pattern my work: No one can say who built the great cathedrals - we have no record of their names. These builders gave their whole lives for a work they would never see finished. They made great sacrifices and expected no credit. The passion of their building was fueled by their faith that the eyes of God saw everything.
A legendary story in the book told of a rich man who came to visit the cathedral while it was being built, and he saw a workman carving a tiny bird on the inside of a beam. He was puzzled and asked the man, 'Why are you spending so much time carving that bird into a beam that will be covered by the roof? No one will ever see it.' And the workman replied,'Because God sees.'
I closed the book, feeling the missing piece fall into place. It was almost as if I heard God whispering to me, 'I see you, Charlotte. I see the sacrifices you make every day, even when no one around you does. No act of kindness you've done, no sequin you've sewn on, no cupcake you've baked, is too small for me to notice and smile over. You are building a great cathedral, but you can't see right now what it will become.'
At times, my invisibility feels like an affliction. But it is not a disease that is erasing my life. It is the cure for the disease of my own self-centeredness. It is the antidote to my strong, stubborn pride.
I keep the right perspective when I see myself as a great builder. As one of the people who show up at a job that they will never see finished, to work on something that their name will never be on. The writer of the book went so far as to say that no cathedrals could ever be built in our lifetime because there are so few people willing to sacrifice to that degree.
When I really think about it, I don't want my son to tell the friend he's bringing home from college for Thanksgiving, 'My Mom gets up at 4 in the morning and bakes homemade pies, and then she hand bastes a turkey for three hours and presses all the linens for the table.' That would mean I'd built a shrine or a monument to myself. I just want him to want to come home. And then, if there is anything more to say to his friend, to add, 'You're gonna love it there.'
As mothers, we are building great cathedrals. We cannot be seen if we're doing it right. And one day, it is very possible that the world will marvel, not only at what we have built, but at the beauty that has been added to the world by the sacrifices of invisible women.
Great Job, MOM!
- Author Unknown
- Naomi
Wednesday, 8 May 2013
Wednesday's Resource - External Battery for Your Devices
I'm not a techie, but I was driven to find a solution to our battery troubles with our son's iPad. He uses it at school all day, which means a drained battery after school and no iPad available to use unless we could access a power source.
I purchased an external battery that can be used for all of our devices - it provides a full charge when hooked up to a drained iPad. Just the solution I was looking for!
There are many external batteries to choose from. Here are the particulars as described on amazon.ca of the one we use:
- 4-5 full charges or add 40 hours of talk time to your iPhone 5/ 4S/ 4G/ 3GS, 3-4 full charges for Samsung Galaxy S3, 1 full charge for iPad / iPad 2/ Samsung Galaxy Tablets, or 400%+ to most mobile phones' battery life. Also able to charge higher 9V /12 V devices including netbooks, tablets, digital cameras, DV recorders, PSP, NDS, NDSL
- Multi-voltage supports most your mobile devices: Dual 5V 2A USB ports for most smartphones, charge one device with up to 2A output, or dual devices at 2A max. In addition 2 voltage options of 9V and 12V can charge your SLR camera, netbook, etc.; LED indicates charge level
- Reliable Lithium Polymer battery ensures high quality; 500+ recharge cycles over the life of the battery
- Package includes: Anker External Battery / 12 connectors for most phones / 6 laptop connectors / 1 UL-listed DC adapter / 1 DC power wire / 1 USB spring power wire / 1 convenient travel pouch
- Naomi
Monday, 29 April 2013
May Calendar of Events 2013
If you have an event to add, please contact us at info@autismcafe.ca
GENEVA CENTRE FOR AUTISM
The Geneva Centre offers many programs and activities for children and adults with Autism Spectrum Disorder - too many to list here! To learn more please visit http://www.autism.net/index.php.
ERINOAK KIDS
Erinoak Kids has lots of great things to offer children on the spectrum.
For more information please visit: http://www.erinoakkids.ca/Event-Calendar.aspx
KERRY'S PLACE
Kerry's Place has many different workshops and supports for individuals with autism. Please visit http://www.kerrysplace.org/Public/Home.aspx for more information.
AUTISM RESEARCH INSTITUTE
The Autism Research Institute has many great free webinars each month. Coming up in May: Raising a Sensory Smart Child, Meeting the Needs of Siblings, Autism is Treatable, The Autism-Environment Connection, Considerations for Parents of ASD Siblings. Please visit www.autism.com for more information.
MAY EVENTS
Halton Parent Support Group - Oakville
Date: May 2nd, 2013 7:00pm - 9:00pm
Location: Timothy's Coffee, 321 Lakeshore Road E. Oakville, ON
Description: This is a great opportunity to meet other parents and caregivers in an informal, relaxed atmosphere with good snacks and even better company! This group also features regular guest speakers.
Spring Conference 2013 "Supporting Inclusion in 21st Century Classrooms"
Date: May 2nd & 3rd, 2013
Location: Sheraton on the Falls, 5875 Falls Avenue, Niagara Falls, Ontario
Description: For more information or to register, please visit aset-ontario.ca
Description: For more information or to register, please visit aset-ontario.ca
EdCamp Hamilton
Date: May 4th, 2013
Location: Ancaster Senior Public School, 295 Nakoma Road, Hamilton
Description: EdCamp Hamilton is an open and innovative approach to professional dialogue and learning in education. This unconference is dedicated to expanding and extending our conversations about schooling and learning in the 21st century. EdCamp Hamilton is a participant-driven event -- we value and rely on the expertise, experiences, and enthusiasm of all those who participate! For more information please visit www.edcamphamilton.ca
Description: EdCamp Hamilton is an open and innovative approach to professional dialogue and learning in education. This unconference is dedicated to expanding and extending our conversations about schooling and learning in the 21st century. EdCamp Hamilton is a participant-driven event -- we value and rely on the expertise, experiences, and enthusiasm of all those who participate! For more information please visit www.edcamphamilton.ca
Milton Parent Support Group
Date: May 9th, 2013 7:00pm - 9:00pm
Location: Kerry's Place, 917 Nippising Road, MIlton
Description: Do you have a child that has been diagnosed with Autism? Would you like to meet other parents in your situation? Please join us for a parent support group to chat about issues, concerns or any questions you might have.
Missing Links Workshop - Supporting Our Siblings
Date: May14th, 2013 Morning Session 9:00am - 11:00am, Evening Session 6:00pm - 8:00pm
Location: Missing Links, 2317 Fairview Street, Burlington, ON
Description: We are pleased to be offering this unique open talk series for the second time this year. Parents and caregivers are encouraged to attend and share personal experiences with each other. This series provides a guideline of items to consider when speaking to your children about their sibling that has a diagnosis of Autism or Aspergers. We will provide the strategies to help your child understand ASD as talking about ASD is the key to understanding it. For more information or to register contact info@missinglinks.ca
Blue Balloon - Motor Skills Madness
Date: May18th, May 25, 2013 1:30 - 2:00pm
Location: Blue Balloon 6-3305 Harvester Road, Burlington, ON
Description: May is Physiotherapy Awareness Month and we are celebrating by offering a complimentary Motor Skill Madness group. This group will be led by Kaitlyn Ross, one of Blue Balloon's best physiotherapists. This session is geared towards children ages 2 - 10. Your child will participate in activities targeting balance, coordination, ball skills and we'll will be able to determine if your child may benefit from further Physiotherapy. Please visit www.blue-balloon.com to register or for more information.
Blue Balloon - Chattering & Chiming
Date: May 21st, May 29th, 2013 2:00 - 2:30pm
Location: Blue Balloon 6-3305 Harvester Road, Burlington, ON
Description: May is speech and hearing awareness month so if your child gets frustrated trying to communicate, or doesn't have language, or you're struggling to understand your child, this is a great session to attend! Your child will be jammin' to music while we target improving their communication skills through music. This is a great chance to see how your child responds to Music Therapy targeting speech. Please visit www.blue-balloon.com to register or for more information.
The Autists
Date: May 30th, 2013, 6:30pm
Location: Corus Quay, 25 Dockside Dr. Toronto, ON
Description: The Autists returns for its fourth and best-ever year, brining you a simulating evening of gourmet food trucks, circus performers and casino games-- all to benefit children, youth and adults with autism. For more information please visit www.theautistsgala.com.
2nd Annual ASD Vocational Conference
Date: June 6th - June 7th, 2013 (All day)
Location: Canada Olympic Park, 88 Canada Olympic Road SW, Calgary, Alberta
Description: The 2nd Annual ASD Vocational Conference, "What Will it Take: Advancing Vocational Opportunities for Persons with Autism Spectrum Disorders" will be in Calgary, Alberta June 6th and 7th, 2013. The conference is being hosted this year by The Ability Hub, and will be in the conference venue at Canada Olympic Park. This conference will build on last year's conference in Toronto. The program is being designed to be a hands-on working conference but with dynamic keynote speakers. For more information please visit www.theabilityhub.org/events/2nd-annual-asd-vocational-conference-register-now.
Description: The 2nd Annual ASD Vocational Conference, "What Will it Take: Advancing Vocational Opportunities for Persons with Autism Spectrum Disorders" will be in Calgary, Alberta June 6th and 7th, 2013. The conference is being hosted this year by The Ability Hub, and will be in the conference venue at Canada Olympic Park. This conference will build on last year's conference in Toronto. The program is being designed to be a hands-on working conference but with dynamic keynote speakers. For more information please visit www.theabilityhub.org/events/2nd-annual-asd-vocational-conference-register-now.
Family Engagement Initative
Date: June 6th, 2013 4:00pm - 7:00pm
Location: ROCK Burlington Office, 471 Pearl Street
Description: Build relationships & share experiences. Have fun at events, enjoy workshops or join the Family Advisory Council. Have a positive impact on child and youth mental health services. Contact Darlene Wierski-Devoe at families@rockline.ca (905) 634-2347 for more information.
Description: Build relationships & share experiences. Have fun at events, enjoy workshops or join the Family Advisory Council. Have a positive impact on child and youth mental health services. Contact Darlene Wierski-Devoe at families@rockline.ca (905) 634-2347 for more information.
Visual Strategies: Make and Take
Date: June 6th, 2013 6:30pm - 8:30pm
Location: CWSDS Halton Support Services, 3rd Floor, 53 Bond St. Oakville
Description: This is a practical session designed to asset respite workers, parents, caregivers and agency staff with learning how to use and build visual aids. An overview of First-Then boards, visual schedules, choice boards and more. Participants will leave with a visual aid. To register go to www.kerrysplace.org/respitetraining or call Kimberlea at (905) 844-7864 ext. 433
Description: This is a practical session designed to asset respite workers, parents, caregivers and agency staff with learning how to use and build visual aids. An overview of First-Then boards, visual schedules, choice boards and more. Participants will leave with a visual aid. To register go to www.kerrysplace.org/respitetraining or call Kimberlea at (905) 844-7864 ext. 433
Missing Links - A Day in the Life
Date: June 11th, 2013 Morning Session 9:00am - 11:00am, Evening Session 6:00pm - 8:00pm
Location: Missing Links, 2317 Fairview Street, Burlington, ON
Description: Do you want to learn how to make the most of your child's day at home? Or how to set up for both a productive eventing at home while still making room for leisure activities that you and your child enjoy? Yes its possible; you can teach your child to finish homework or to finish a chore without worrying about the maladaptive behaviours that interfere with getting things done. For instance, this series will demonstrate ways to arrange an environment strategically, how to set your child up to be independent and lastly how to incorporate leisure time so that 'down time' and leisure activities are included. For more information or to register contact info@missinglinks.ca
24th Annual Reach for the Rainbow Conference
Date: June 13th, 2013, 8:00am - 4:30pm
Location: Humber College, Lakeshore Campus (West Campus), 3199 Lakeshore Blvd, Toronto.
Description: The Annual Reach for the Rainbow Conference, held during Reach for the Rainbow week as proclaimed by the City of Toronto, is one of the largest continuously operating single day camp conferences in Canada. The yearly training event focuses on a wide variety of topics ideal for residential and day camps integrating children or young adults with disabilities. The conference features volunteer speakers from various agencies including Holland Bloorview Rehabilitation Hospital, ErinoakKids, Adventureworks! and Epilepsy Toronto. For more information please visit www.reachfortherainbow.ca
Description: The Annual Reach for the Rainbow Conference, held during Reach for the Rainbow week as proclaimed by the City of Toronto, is one of the largest continuously operating single day camp conferences in Canada. The yearly training event focuses on a wide variety of topics ideal for residential and day camps integrating children or young adults with disabilities. The conference features volunteer speakers from various agencies including Holland Bloorview Rehabilitation Hospital, ErinoakKids, Adventureworks! and Epilepsy Toronto. For more information please visit www.reachfortherainbow.ca
2013 CONFERENCE: AUTISM, ADD/HD, OCD AND TOURETTE SYNDROME
Date: June 15, 2013
Location: Burlington, ON
Description: One of the keynote speakers this year is Dr. Elizabeth Mumper, M.D., FAAP. Dr. Mumper is the CEO of the RIMLAND Centre. Advocates for Families is her practice devoted to the care of children with autism and other neurodevelopmental concerns. She lectures internationally and mentors physicians all around the world. For more information please visit www.treatautism.ca
McMaster Children's Hospital - Coping and Relaxation Parent Workshop
Date: June 17th, 2013, 6:30 - 8:30pm
Location: McMaster Children's Hospital, Evel Bldg, Room 308, Hamilton
Description: Parents will learn the signs of distress and how to bring comfort into their everyday lives. Parents learn practical relaxation and coping strategies they can transfer to their children. To register please contact the Community Education Service registration line at (905) 521-2100, ext 74147
Surfers Healing Camp
Date: August 24, 25th, 2013
Location: Toronto, ON
Description: Free Surf Camp. For more information please visit www.surfershealing.org.
McMaster Children's Hospital - Mission Possible
Date: Start date July 10, 2013 (8 sessions). 3:00 - 4:30
Location: McMaster Children's Hospital, Evel Bldg, Room 212/213, Hamilton
Description: Eight session social skill groups for children ages 7 - 9 and 10 - 12 and their caregiver(s). Through this group children are given the opportunity to practice social skills that may be difficult for them. Reviewing and practicing how to introduce you, reading body language, negotiating an compromising, following rules and getting along with others will be explored. To register please contact the Community Education Service registration line at (905) 521-2100, ext 74147
Connect 360 Summer Camp
Date: Camp sessions July 15 - July 26 & July 29 - August 9th
Location: 21980 Highway 12, Sunderland, ON
Description: A FUN summer camp opportunity for kids to travel "360" - full circle - meet new kids, ' break the codes' for friendship building, play exciting team games, express creativity through arts 'n' crafts, rise to team challenges and celebrate at the end with a patio party! To reserve a spot please contact Sandy Ianuzzo at sianuzzo@preciousminds.com. Thursday, 25 April 2013
Wednesday, 24 April 2013
Wednesday's Website - Edmark Reading Program
www.proedinc.com
First, I have to give credit to Heather for sourcing this resource. Second, I have to thank her, and thank her again and again, for bringing it to my attention. If you have a child for whom learning to read using the traditional phonics methods will not work, then this might be the method for you! I feel as if I am sitting on a pot of gold - I wasn't sure how we could teach our son to read, and now I have no doubt that we can get him there.
Let me start at the beginning. Heather first heard of this reading method from the mom of a seventeen year old with autism who learned to read using the Edmark system in an integrated classroom. This method was developed to help students who need an alternative to phonics. The following is a description from the Pro-Ed website:
"The key to [its] success is the program's use of a carefully sequenced, highly repetitive word recognition method combined with errorless learning. This approach eliminates incorrect responses and helps students view themselves as readers. The Edmark Reading Program ensured success to students of all ages who have not yet mastered beginning reading."
Essentially, you teach a child to read using a "whole word" method - memorizing the words. Each level comes with a program overview guide which instructs you on how to teach the program, as well as great supplementary materials, such as a picture match component, a phrase match component, as well as readers that support each level of word recognition reached! Completing Level 1 and Level 2 can get a child reading at a grade 3 level. If you have a non-verbal child, the program materials include a signing DVD to teach the signs for each word. Right now you can purchase print material or software, or both.
Now, I won't sugar coat this. You have to be able to work with your child at home on this if your school won't implement the program for him or her. And it takes time. Within a month, my son is able to recognize 5 words relatively reliably, and that's with me taking longer for each lesson rather than moving forward as permitted under the program. I have been spending about 5 to 10 minutes a day total on it. His centre is also working on reading skills with him, however they are using a more clinical approach.
I'll keep you updated, but so far, so good. I believe that this is really a learn to read program that will work for my low-verbal son with classic autism!
- Naomi
Tuesday, 23 April 2013
Tuesday's Trick of the Trade - 9 Tips for Dentist Visits
(Updated April 23, 2013)
Visits to the dentist are pretty tricky for kids with or without sensory issues. They are particularly tricky for kids who may not understand what dental check-ups are for. Some of these tricks may help your dental check-ups go a little more smoothly:
1. Find a dentist in your area that works with kids on the spectrum. The more experience they have, the less you have to explain and they can give you a trick or two!
2. Consider purchasing a dental pick and dental mirror from your local pharmacy to get your child used to the equipment. This was long term planning for us - there was no way a dentist could put those in our child's mouth once upon a time. We practiced with the equipment at home in small increments over a two year period. As of this year, our son is able to tolerate the equipment used by a hygienist in the dental office for a couple of seconds. The same goes for plastic gloves and a dental mask. The more your child can experience at home, the less reluctant he or she will be at the dentist.
2. Consider purchasing a dental pick and dental mirror from your local pharmacy to get your child used to the equipment. This was long term planning for us - there was no way a dentist could put those in our child's mouth once upon a time. We practiced with the equipment at home in small increments over a two year period. As of this year, our son is able to tolerate the equipment used by a hygienist in the dental office for a couple of seconds. The same goes for plastic gloves and a dental mask. The more your child can experience at home, the less reluctant he or she will be at the dentist.
3. Take pictures of your dental office, including the dentist (with and without a mask). I always show them to my kiddo before going.
4. Bring your child's toothbrush, toothpaste, and dental floss with you. The less change, the better!
5. Our dental check-ups used to be only 5 minutes long, and the purpose was to give the dentist a peek into our son's mouth. Our dentist works super well with kids on the spectrum, and is very flexible with respect to where and how the check-ups are done. For example, on a good day, we started in the dental chair with me "brushing" my kiddo's teeth without toothpaste. This was to get him to keep his mouth open long enough for the dentist to peek inside. Then we may have moved to a regular chair in the exam room. The hygienist worked quickly with the light to follow my darting child around. We did this for a couple of years to basically get our son used to the dentist's environment.
6. Consider asking your dentist to clean one tooth at a time on regularly scheduled visits to help your child get used to the feeling of all the equipment. Kathy has a dentist that actually recommended this, asking her to come in with her daughter once a month to clean a couple of teeth. On the first visit, they were able to clean six teeth!
We implemented a similar regime with our dentist in the last six months. We visit the same hygienist every three months and she does what work she can. The goal on these visits is to have our son sit in the chair and tolerate the pick and mirror exam, as well as allow polish and a fluoride treatment for a few teeth. Our visits are scheduled first thing in the morning and we always see the same hygienist. I can't tell you how thrilled I was to learn that she researched autism and sensory issues and had as little equipment and distractions as possible in the cleaning room. I videotape these cleaning sessions and I chat with my son about what will happen while we watch the video (and of course, complement him while we watch him do a great job!) before the next scheduled visit.
We implemented a similar regime with our dentist in the last six months. We visit the same hygienist every three months and she does what work she can. The goal on these visits is to have our son sit in the chair and tolerate the pick and mirror exam, as well as allow polish and a fluoride treatment for a few teeth. Our visits are scheduled first thing in the morning and we always see the same hygienist. I can't tell you how thrilled I was to learn that she researched autism and sensory issues and had as little equipment and distractions as possible in the cleaning room. I videotape these cleaning sessions and I chat with my son about what will happen while we watch the video (and of course, complement him while we watch him do a great job!) before the next scheduled visit.
7. We cannot do a full cleaning or x-rays at this point. Our kiddo requires anesthetic for all of that. Consequently, our full cleanings are not regular (outside of the "practice cleanings" described above). We wait until there is a bit of work do be done. On average, it seems kids who require anesthetic may go every 2 or 3 years for full cleanings and major dental work. You want to balance the risks of anesthetic with oral hygiene.
8. If your child is motivated by sugary treats, consider having a coating put on your child's molars. The plastic coating works wonders to prevent cavities and this allows you more time and less guilt in using treats for successful therapies. Some dentists may do the coating on adult molars as they come in as well. Prevention is worth its weight in gold when you can't follow a regular full dental cleaning or oral hygiene routine.
9. Patience is key. Some visits are good, others are bad. But the more your child experiences them, the easier they become!
- Naomi
- Naomi
Subscribe to:
Posts (Atom)





